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Volume 4 -

Issue 2 - 2016

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Trust 2.0: Data Governance to Support Health and Discovery

Case study

Building a Governance Strategy for CER: The Patient Outcomes Research To Advance Learning (PORTAL) Network Experience

Andrea R. Paolino, Elizabeth A. McGlynn, Tracy Lieu, Andrew F. Nelson, Stephanie Prausnitz, Michael A. Horberg, David E. Arterburn, Michael K. Gould, Reesa L. Laws, John Steiner
- PDF (EN)
28 Mar 2016

4(2):2
Extracting Electronic Health Record Data in a Practice-Based Research Network: Lessons Learned from Collaborations with Translational Researchers

Allison M. Cole, Kari A. Stephens, Gina A. Keppel, Hossein Estiri, Laura-Mae Baldwin
- PDF (EN)
29 Mar 2016

4(2):4
Software-Enabled Distributed Network Governance: The PopMedNet Experience

Melanie Davies, Kyle Erickson, Zachary Wyner, Jessica M. Malenfant, Rob Rosen, Jeff Brown
- PDF (EN)
30 Mar 2016

4(2):5

Commentary / Editorial

Bidirectional Data Collaborations in Distributed Research

Kevin Haynes, Nandini Selvam, Mark J. Cziraky
- PDF (EN)
22 Mar 2016

4(2):1
The Future of Patient Engagement in the Governance of Shared Data

Carolyn Petersen
- PDF (EN)
29 Mar 2016

4(2):6
Privacy, Fairness, and Respect for Individuals

Dixie B. Baker, Jane Kaye, Sharon F. Terry
- PDF (EN)
31 Mar 2016

4(2):7
Privacy, Security, and Patient Engagement: The Changing Health Data Governance Landscape

John H. Holmes
- PDF (EN)
31 Mar 2016

4(2):9

Empirical research

Ethics Issues Arising in the Transition to Learning Health Care Systems: Results from Interviews with Leaders from 25 Health Systems

Stephanie R. Morain, Nancy E. Kass
- PDF (EN)
29 Mar 2016

4(2):3

Review

Data, Data Everywhere, But Access Remains a Big Issue for Researchers: A Review of Access Policies for Publicly-Funded Patient-level Health Care Data in the United States

Jalpa A. Doshi, Franklin B. Hendrick, Jennifer S. Graff, Bruce C. Stuart
- PDF (EN)
31 Mar 2016

4(2):8

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