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Data, Data Everywhere, But Access Remains a Big Issue for Researchers: A Review of Access Policies for Publicly-Funded Patient-level Health Care Data in the United States

Published on 31 Mar 2016.

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- Balancing benefits and harms: privacy protection policies, Pharmacoepidemiology and Drug Safety 25(8),
  DOI: http://doi.org/10.1002/pds.4048
- Examining Tensions That Affect the Evaluation of Technology in Health Care: Considerations for System Decision Makers From the Perspective of Industry and Evaluators, JMIR Medical Informatics 5(4),
  DOI: http://doi.org/10.2196/medinform.8207
- Big data handling mechanisms in the healthcare applications: A comprehensive and systematic literature review, Journal of Biomedical Informatics
  DOI: http://doi.org/10.1016/j.jbi.2018.03.014
- Identifying relationships between imaging phenotypes and lung cancer-related mutation status: EGFR and KRAS, Scientific Reports 10(1),
  DOI: http://doi.org/10.1038/s41598-020-60202-3
- A Scoping Review of Data Sources for the Conduct of Policy-Relevant Substance Use Research, Public Health Reports
  DOI: http://doi.org/10.1177/00333549211038323
- Health-Related Data Sources Accessible to Health Researchers From the US Government: Mapping Review, Journal of Medical Internet Research
  DOI: http://doi.org/10.2196/43802
- Synthetic data in health care: A narrative review, PLOS Digital Health 2(1),
  DOI: http://doi.org/10.1371/journal.pdig.0000082