Reading: Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Resear...

Download

A- A+
Alt. Display
  • Login has been disabled for this journal while it is transferred to a new platform. Please try again in 48 hours.
Special Collection: HCSRN Special Collection

Review

Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network

Authors:

V. Paul Doria-Rose ,

Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, US
X close

Robert T. Greenlee,

Marshfield Clinic Research Institute, Marshfield, WI, US
X close

Diana S. M. Buist,

Kaiser Permanente Washington Health Research Institute, Seattle, WA, US
X close

Diana L. Miglioretti,

Kaiser Permanente Washington Health Research Institute, Seattle, WA; University of California Davis School of Medicine, Davis, CA, US
X close

Douglas A. Corley,

Division of Research, Kaiser Permanente Northern California, Oakland, CA, US
X close

Jeffrey S. Brown,

Department of Population Medicine, Harvard Medical School, Boston, MA; Harvard Pilgrim Health Care Institute, Boston, MA, US
X close

Heather A. Clancy,

Division of Research, Kaiser Permanente Northern California, Oakland, CA, US
X close

Leah Tuzzio,

Kaiser Permanente Washington Health Research Institute, Seattle, WA, US
X close

Lisa M. Moy,

Division of Research, Kaiser Permanente Northern California, Oakland, CA, US
X close

Mark C. Hornbrook,

Center for Health Research, Kaiser Permanente Northwest, Portland, OR, US
About Mark C.
Retired
X close

Martin L. Brown,

Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, US
About Martin L.
Retired
X close

Debra P. Ritzwoller,

Institute for Health Research, Kaiser Permanente Colorado, Aurora, CO, US
X close

Lawrence H. Kushi,

Division of Research, Kaiser Permanente Northern California, Oakland, CA, US
X close

Sarah M. Greene

Health Care Systems Research Network, Seattle, WA, US
X close

Abstract

The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN’s 20-year experience and evolution. The network combined its members’ scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.

How to Cite: Doria-Rose VP, Greenlee RT, Buist DSM, Miglioretti DL, Corley DA, Brown JS, et al.. Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network. eGEMs (Generating Evidence & Methods to improve patient outcomes). 2019;7(1):7. DOI: http://doi.org/10.5334/egems.273
166
Views
33
Downloads
6
Twitter
  Published on 29 Mar 2019

Galley file missing.

Please contact support [at] ubiquitypress.com

comments powered by Disqus